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Prayers and pixie dust to Hayden and your family. Can't wait to read your post that it worked!
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Tons of on the way!!
Kelly
4/98 Offsite
11/03 Make a Wish Trip
8/05, 4/07, 4/08, 4/09, 4/11, 4/12, 4/13, 4.14
Sheraton Vistana Resort
11/07 Hilton Grand Vacations Sea World
Next Trip: 04/15 Sheraton Vistana
Give the Gift of Life; Be an Organ Donor!!
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Sending pixie dust, prayers, and good thoughts your way.
Cruises:
Feb 12-16, 2012 (Dream), Oct 20-27, 2012 (Fantasy Eastern), Sept 8-12, 2013 (Dream) Jan 20-24, 2014 (Magic) Sept 14-18, 2015 (Dream) Sept 25-29, 2017 (Dream) Sept 22-29, 2018 (Fantasy Eastern) Sept 23-27, 2019 (Dream)
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Prayers for Hayden, Kyle and Eva coming your way from Northern Va! He can fight this with a little Hang in there guys!
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I'll keep Hayden in prayer.
May the antibiotic work and Hayden start to feel better.
May God give you the strength and patience you need as well.
Julie
Next Up:
Summer 2018... WE ARE BACK!!!
2 families
4 teenagers and Larry
Taking on the parks!
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Get well soon Hayden!
Carribean Beach '95
Wilderness Lodge '96 '97 '98
All Star Music '00 '01 '04
Off-site '03
All Star Movie '05 '06
All Star Music 07'
Pop Century with DBF Sep 08'
Pop Century with family March 09'
Next trip: Disney and Universal Studios April 2015!
PINK!
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Hope you feel better soon.
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Aww, lots more prayer and pixie dust coming from my area too! He has so many people rooting for him!!!
As a side note, is there a website or thread here somewhere that details a little bit more his diagnosis and whatnot? I don't want to pry and I realize it really is none of my business, I'm just curious!
Star light, star bright,
first star I see tonight.
I wish I may, I wish I might,
have the wish, I wish tonight.
We'll make a wish, and do as dreamers do,
and all our wishes,
will come true.
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As a side note, is there a website or thread here somewhere that details a little bit more his diagnosis and whatnot? I don't want to pry and I realize it really is none of my business, I'm just curious!
You are not prying and I never mind talking about my son. When Hayden was a little more than 1 yr old he was diagnosed with a rare neurological degenerative disease called Krabbe. It only affects 1 out of 250,000 children. To put that in perspective he was born in 2006 out of all the babies born in North Carolina in 2006 he was the only one to be diagnosed with this disease. Basically the disease attacks the peripheal nervous system, his motor skills inparticular and is usually fatal by the age of 2. At the time he was diagnosed they gave us a prognosis of 6-9 months. Well Hayden just celebrated his 2yr and 9mth birthday at Epcot on October 10! So he has blown the doctor's orginal expectations by a year and one month. And we have been fortunate enough to celebrate four of his birthdays in Disney World which he loves (especially meeting Mickey. He was the third face he ever recognized) Since he was diagnosed I have had to ask for pixie dust I think three times and every time it has worked wonders and we are expecting nothing less this time. Eva and I are already astounded by the responses we have gotten in just the couple of days this thread has been up. Thank you all so much and I will keep you informed.
Kyle
(Hayden's PROUD Dad)
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Heather
YC-7/99,00,8/07
BC-8/01
Poly-8/02,03,7/05
POR-12/03,9/11
WL-7/04
POFQ-12/04,8/06
Pop-10/05,5/07,12/08,8/09,1/11,3/13
CBR-11/07,09,10/11,5/12
ASMo-1/09
ASSp-1/10,8/12
Offsite-8/08,5/09
ASMu-8/10,11/10
CSR-8/10
AoA-12/12, 9/13
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Sending some more your way! Keep us posted!
Danielle
First Trip: April 1977
Last Trip:- June 15-June 27 BLT and Vero Beach
Next Trip: June 20-30 Vero Beach
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i hope your little guy gets better real soon!!!
*bRiTTaNy*
35 trips to WDW already...
May 2012 - Daughters first trip - one bedroom Villa at Wilderness Lodge
Sept 2012 - Pirate room at CBR
Dec 2014 - SSR -second daughters first trip and my older daughters 5th Birthday!!
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