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Glad you got the results back so quickly. Sending lots of pixie dust for a speedy recovery!
Feb 26 - Mar 5, 2019 Port Orleans Riverside
Sept 13-19, 2015 at CBR
Jan, 2011 - off site
Jun 16-21, 2009, ASSports
Dec. 7-13, 2008, Royal Plaza at DTD
April 16-20, 2007 ASMusic
Feb-Mar 2005 Off Site
Oct. 1986 Ft. Wilderness 10th Anniv
Oct. 1976 Honeymoon Off Site
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Prayers, {{{Huggs}}} and
'83~Off
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UPDATE:
So we had our first set back on this journey. His platelet levels got up to about 31K
And then plummeted over the next week or so.
This past Tuesday evening he got hit in the head and we have to take him for safe precautions, to get examined. Well within a few hours, he started brusing again and lots of petechiae all over his body.
They did a cat scan and he had no brain bleeds thank God. But his platelets had dropped to critical level [10K].
So they transported him from our local hospital to Nemours.
They checked his levels again as soon as they got there and they had dropped to 8K. A 2K drop in less than 4 hours.
He was admitted and then did a RHoGam treatment. Which basically boosts the platelets up enough to get out of critical level. It's a temporary fix, but helps so they don't risk any internal bleeding which is what we want to avoid because that's when things can get bad quickly.
So we were there from Tuesday night until Thursday afternoon. His levels finally came up to 26K which gets us just out of critical level. Still low, but less threatening.
Still have a long road ahead of us until this all resolves itself.
I think the worst part is that any treatment is basically a temporary fix until the body straightens itself out and the ITP goes into remission.
Here's to months of recovery
Thank you for continued thoughts, prayers, love & light...and lots of
Sadly though because of all this, money is tight having to go back and forth to Nemours and with him having to be less active, I've had to cancel our annual labor day vacation to Disney. Just can't swing paying for the hotel and meals for 4 days. We can go over for a day trip though. Thinking Animal Kingdom where it can be more low key but lots of fun exploring. They love AK!
Terra - Wife, mother, special needs teacher. Disney addict! °o°
Advocate for my 2 sons. David: Auto-immune disorder. Praying for remission!ASD/SPD & Aaron: ADHD/Anxiety/ASD. Life makes us stronger!
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Sending loads of good wishes & ixies. Keep your spirits up. We have you & David in our prayers.
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Terra, I'm sorry I am just seeing this post now, haven't been on the boards in a long time. I'm so sorry to hear your son and family is going through this. I can only imagine how stressful this all has been for you all. Sending lots of positive thoughts, prayers and pixie dust your way, for a speedy recovery and no more set backs.
~*~Tonya~*~
1st = 1992
ASMo = Jan. 6-12 '07
POP = Jan 5-11 '08
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BCV/BWV=Jan. 24-Feb. 1 '14
BWV = Jan. 16-24 '15
BWV = Jan. 29-Feb. 6 '16
BWV = Jan. 20-28 '17
BWV = Jan. 26-Feb. 3 '18
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Originally Posted by TinkerbellT421
Terra, I'm sorry I am just seeing this post now, haven't been on the boards in a long time. I'm so sorry to hear your son and family is going through this. I can only imagine how stressful this all has been for you all. Sending lots of positive thoughts, prayers and pixie dust your way, for a speedy recovery and no more set backs.
Welcome back
Terra - Wife, mother, special needs teacher. Disney addict! °o°
Advocate for my 2 sons. David: Auto-immune disorder. Praying for remission!ASD/SPD & Aaron: ADHD/Anxiety/ASD. Life makes us stronger!
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So great that you know what's going on, but I'm so sorry about the setbacks and hospital visit. You all must be exhausted. Lots and lots of for all of you!
Susanne
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Terra, I will keep David and you in my prayers!
Jeff
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Bumping this to check in on David. I hope he is doing better.
Jennifer (aka Mickey'sGirl)
INTERCOT Staff: Guests with Special Needs, Dining and Disney Characters
Last trip: March 2016 - Fantasy
Next trip: Aug 2017 - Aulani
I am a Galactic Hero once more!
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Sending prayers. I hope he gets better soon.
TRACEY
ºOº
Disneyland as a kid
11/02-POFQ * 07/04-Disneyland PPH * 11/05-AKL * 10/08-CBR * 12/10-WL * 11/11-AKL * 11/12-AKL * 11/13-GF * 11/14-AKL * 06/15-Poly * 12/15-YC * 5/16-BWI * 12/16-BC * 5/17-Poly * 10/17-GF * 12/18-POFQ * 12/19-YC * 12/20-CSR * 12/21-BC * 3/22-CSR
Next: 9/22*BWI
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