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Need some pixie dust for my son
This is my first posting to Intercot, although I wish it was under better circumstances. I need some advice. My 14 month old son has been diagnosed with a rare and terminal neurological degenerative disease called Krabbes disease. The doctors have given us a timeline of six to twelve months. We are huge disney fanatics like most everyone else here, and it is our dream to have a family vacation at Walt Disney World while we have the time. There apparently are not any organizations that will help families with children under the age of two and a half, at least none that I have found. We have talked to Make-a-Wish, Children's Wish Factory, Child's Wish, and a couple of others as well, and gotten the same answer. My family has pulled together and they are getting us to Walt Disney World in May, but it has strained them to their limits. Does anyone know of any organizations that may help families with children under the age of two and a half? Any ideas or suggestions would be helpful. Thank you.
I have posted a link for any one who would like more information on the disease and information about a fund started in his name by my sister-in-law.
greensborotaekwondo.com/MeetHaydenJones.pdf
Last edited by Beast_fanatic; 04-03-2007 at 09:55 PM.
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