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Page 3 of 3 FirstFirst 123
Results 41 to 53 of 53
  1. #41
    Join Date
    Nov 2004
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    Finleyville, PA
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    406
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    Glad you got the results back so quickly. Sending lots of pixie dust for a speedy recovery!

    Feb 26 - Mar 5, 2019 Port Orleans Riverside
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  3. #42
    Join Date
    Apr 2001
    Location
    New York, USA
    Posts
    580
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    Prayers, {{{Huggs}}} and

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  4. #43
    Join Date
    Jul 2002
    Location
    47 miles from the Magic! Babson Park, FL
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    2,557
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    UPDATE:

    So we had our first set back on this journey. His platelet levels got up to about 31K
    And then plummeted over the next week or so.
    This past Tuesday evening he got hit in the head and we have to take him for safe precautions, to get examined. Well within a few hours, he started brusing again and lots of petechiae all over his body.
    They did a cat scan and he had no brain bleeds thank God. But his platelets had dropped to critical level [10K].
    So they transported him from our local hospital to Nemours.
    They checked his levels again as soon as they got there and they had dropped to 8K. A 2K drop in less than 4 hours.
    He was admitted and then did a RHoGam treatment. Which basically boosts the platelets up enough to get out of critical level. It's a temporary fix, but helps so they don't risk any internal bleeding which is what we want to avoid because that's when things can get bad quickly.
    So we were there from Tuesday night until Thursday afternoon. His levels finally came up to 26K which gets us just out of critical level. Still low, but less threatening.
    Still have a long road ahead of us until this all resolves itself.

    I think the worst part is that any treatment is basically a temporary fix until the body straightens itself out and the ITP goes into remission.
    Here's to months of recovery
    Thank you for continued thoughts, prayers, love & light...and lots of

    Sadly though because of all this, money is tight having to go back and forth to Nemours and with him having to be less active, I've had to cancel our annual labor day vacation to Disney. Just can't swing paying for the hotel and meals for 4 days. We can go over for a day trip though. Thinking Animal Kingdom where it can be more low key but lots of fun exploring. They love AK!
    Terra - Wife, mother, special needs teacher. Disney addict! °o°

    Advocate for my 2 sons. David: Auto-immune disorder. Praying for remission!ASD/SPD & Aaron: ADHD/Anxiety/ASD. Life makes us stronger!

  5. #44
    Join Date
    Jan 2003
    Location
    Perfect Park Acres
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    6,653
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    Sending prayers and pixie dust to you and your family!
    Thank you for keeping us updated on David.
    "Im a storyteller. Of all the things I've ever done, I'd like to be remembered as a storyteller." Walt Disney

    The mighty Roman Empire bridged 3 continents with a vast system of roads. The fastest information highways the world had ever known.
    East, West, North and South, all roads led to Rome

  6. #45
    Join Date
    Aug 2008
    Location
    Morristown NJ
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    7,146
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    Thanks for the update. Continued prayers and pixie dust
    - Lynn -
    INTERCOT Staff: Theme Parks, DVC

  7. #46
    Join Date
    Oct 2014
    Posts
    531
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    Sending loads of good wishes & ixies. Keep your spirits up. We have you & David in our prayers.

  8. #47
    Join Date
    Nov 2007
    Location
    Rhode Island
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    3,336
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    Terra, I'm sorry I am just seeing this post now, haven't been on the boards in a long time. I'm so sorry to hear your son and family is going through this. I can only imagine how stressful this all has been for you all. Sending lots of positive thoughts, prayers and pixie dust your way, for a speedy recovery and no more set backs.
    ~*~Tonya~*~

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  9. #48
    Join Date
    Jul 2002
    Location
    47 miles from the Magic! Babson Park, FL
    Posts
    2,557
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    Quote Originally Posted by TinkerbellT421 View Post
    Terra, I'm sorry I am just seeing this post now, haven't been on the boards in a long time. I'm so sorry to hear your son and family is going through this. I can only imagine how stressful this all has been for you all. Sending lots of positive thoughts, prayers and pixie dust your way, for a speedy recovery and no more set backs.
    Welcome back
    Terra - Wife, mother, special needs teacher. Disney addict! °o°

    Advocate for my 2 sons. David: Auto-immune disorder. Praying for remission!ASD/SPD & Aaron: ADHD/Anxiety/ASD. Life makes us stronger!

  10. #49
    Join Date
    Jul 2001
    Location
    Florida
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    40,875
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    What a distressing journey for your family!! More pixie dust headed your way!!
    Linda aka: Faline
    INTERCOT Staff: Vacation Planning,Trip Reports and Disney Camping
    [email protected]

  11. #50
    Join Date
    Feb 2009
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    3,437
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    So great that you know what's going on, but I'm so sorry about the setbacks and hospital visit. You all must be exhausted. Lots and lots of for all of you!
    Susanne

  12. #51
    Join Date
    Nov 1999
    Location
    Mid Michigan
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    26,671
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    Terra, I will keep David and you in my prayers!
    Jeff

  13. #52
    Join Date
    Sep 2005
    Location
    Ajax, ON (1,325 miles from Disneyworld)
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    7,471
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    Bumping this to check in on David. I hope he is doing better.
    Jennifer (aka Mickey'sGirl)
    INTERCOT Staff: Guests with Special Needs, Dining and Disney Characters

    Last trip: March 2016 - Fantasy
    Next trip: Aug 2017 - Aulani

    I am a Galactic Hero once more!

  14. #53
    Join Date
    Jun 2005
    Location
    SW Florida
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    Sending prayers. I hope he gets better soon.
    TRACEY
    ºOº

    Disneyland as a kid
    11/02-POFQ * 07/04-Disneyland PPH * 11/05-AKL * 10/08-CBR * 12/10-WL * 11/11-AKL * 11/12-AKL * 11/13-GF * 11/14-AKL * 06/15-Poly * 12/15-YC * 5/16-BWI * 12/16-BC * 5/17-Poly * 10/17-GF * 12/18-POFQ * 12/19-YC * 12/20-CSR * 12/21-BC * 3/22-CSR

    Next: 9/22*BWI





















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