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  1. #1
    Join Date
    Mar 2005
    Location
    Massachusetts
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    2,654
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    Default Pixie Dust for Kids with New Kidneys

    I was wondering if you could help me out with some pixie dust here.

    My son and another boy his age both had kidney transplants (one day apart) in November. They are both having some issues.

    The other boy has PTLD which is a cancer in the lymph system brought on by immune suppression. He has like 15 tumors on his kidney and a few on his liver, spleen, and colon. This is a boy who went through dialysis (we never did) and received a cadaver kidney. They were on top of the world! This is such a big blow.

    We have a much smaller problem but my son is dealing with a latent virus also brought on by immune suppression that can destroy the kidney (thankfully it only attacks the kidney and nothing else). We thought it was getting better but it's not.

    So, do you have any spare pixie dust? My friends need more but we could use a little, too. I feel so selfish that I am just hoping to get to Disney next week and they're probably fighting for his life.
    Kelly


    4/98 Offsite
    11/03 Make a Wish Trip
    8/05, 4/07, 4/08, 4/09, 4/11, 4/12, 4/13, 4.14
    Sheraton Vistana Resort
    11/07 Hilton Grand Vacations Sea World

    Next Trip: 04/15 Sheraton Vistana



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  3. #2
    Join Date
    Jun 2000
    Location
    Spencer, MA, USA
    Posts
    3,102
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    Default

    Kelly,
    I'm sorry to hear of your son's health problems and those of the other young boy. Sending loads of pixie dust magic to your family and the other famiy in hopes that both boys will recover soon.

    Please go and enjoy your WDW vacation and do not feel guilty. Enjoy all the magical memories that you will be making and let us here on intercot work our pixie dust magic.
    Jeri Lynn

    Fantasy 9/18 Dream 5/16 Fantasy 9/15 Wonder 10/14 Dream BCV ~ 12/09, BC ~9/18, 12/17 10/15 10/12 11/11 10/10 10/08, 11/07, 9/07, 11/06, 9/06, 12/05, 12/04, 9/04, 9/03, 9/02, 9/01, 12/2000, 9/99
    YC 9/16
    AKL 12/05, 9/05, 11/13
    DXL 9/98
    CBR 9/96
    DXL 5/93
    Off-site 1984, 1908

  4. #3
    Join Date
    Mar 2004
    Location
    Chicago Suburbs
    Posts
    8,368
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    Default

    I'm so sorry to hear about the setbacks. Prayers and pixie dust on the way.
    Trips: Too Many to Count! Last Trips: April 2013 CSR; July 2013 Aloha Aulani, The Sequel, Hawaii. Multiple trips to WDW, DL, DCL!

    Coming up: September 2013 "Scary September" at Disneyland/DCA/Universal Hollywood.

    Proud DVC Members since 2004!

  5. #4
    Join Date
    Sep 2005
    Location
    Ajax, ON (1,325 miles from Disneyworld)
    Posts
    7,471
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    Kelly I am thinking of you and your family every day....and sending some super powered for your son and his friend.
    Jennifer (aka Mickey'sGirl)
    INTERCOT Staff: Guests with Special Needs, Dining and Disney Characters

    Last trip: March 2016 - Fantasy
    Next trip: Aug 2017 - Aulani

    I am a Galactic Hero once more!

  6. #5
    Join Date
    Nov 1999
    Location
    Mt. Laurel, New Jersey
    Posts
    4,249
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    Default

    As my mother recently received a kidney transplant (like the other family, hers was not from a live donor), I am sending lots of and prayers to both of your families!
    Christine șoș

    Intercot Staff-Accommodations, Dining, Guests with Special Needs

    Please support Intercot's Sponsors

  7. #6
    Join Date
    Oct 2005
    Location
    Howell, NJ
    Posts
    5,947
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    pixie dust is on the way!! please keep us updated!! im hoping for the best!!!
    *bRiTTaNy*
    35 trips to WDW already...
    May 2012 - Daughters first trip - one bedroom Villa at Wilderness Lodge
    Sept 2012 - Pirate room at CBR
    Dec 2014 - SSR -second daughters first trip and my older daughters 5th Birthday!!

  8. #7
    Join Date
    Apr 2005
    Location
    5 miles from the magic!
    Posts
    6,676
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    Default

    Tons of prayers and for both boys! Please keep us updated on their progress...
    INTERCOT Staff-
    Nightlife, Shops, Water Parks/DCL/runDisney

    DVC owner- BLT, Alauni, SSR, Vero, OKW

    Next:

    Oct- WLV
    Nov- Vero
    Dec- BWV
    Jan- SSR runICOT WEEKEND!
    Feb- Poly
    Mar- Disney Wonder
    Apr- AKL Kidani
    May- Vero
    Sept- BLT

  9. #8
    Join Date
    Dec 2005
    Location
    Central Wisconsin
    Posts
    326
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    Default

    Prayers for your family and the other boys as well.

  10. #9
    Join Date
    Jun 2005
    Location
    SW Florida
    Posts
    4,556
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    Default

    Sending lots of prayers and well wishes for your son and the other boy's family.
    TRACEY
    șOș

    Disneyland as a kid
    11/02-POFQ * 07/04-Disneyland PPH * 11/05-AKL * 10/08-CBR * 12/10-WL * 11/11-AKL * 11/12-AKL * 11/13-GF * 11/14-AKL * 06/15-Poly * 12/15-YC * 5/16-BWI * 12/16-BC * 5/17-Poly * 10/17-GF * 12/18-POFQ * 12/19-YC * 12/20-CSR * 12/21-BC * 3/22-CSR

    Next: 9/22*BWI





















  11. #10
    Join Date
    Apr 2002
    Location
    The Horseshoe
    Posts
    26,210
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    Sending lots of dust to both boys. Hope they both are feeling better soon and get some relief from medical procedures.
    Donna
    Intercot Staff

    My father's name was Ferdinand, my mama's name was Liza, they didn't know what to call me so they called me Ferdiliza!
    Billy Hill and the Hillbillies - "I'm OK!"

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  12. #11
    Join Date
    Oct 2004
    Location
    Staten Island NY
    Posts
    6,959
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    and prayers on the way.
    _________________
    Stephanie șoș
    Next up:
    11/11/11

    _______________

    'the only thing that counts is the love of duty; when love & duty are one, then grace is in you & you will enjoy a happiness which passes all understanding.

  13. #12
    Join Date
    Dec 1999
    Location
    Brooklyn, NY
    Posts
    11,220
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    Default

    Kelly, here's a truckload of for each of the boys! I was so touched by your concern for the other boy... God bless you!

    I hope that you enjoy your trip. Getting away and enjoying yourself there (all of you) will do you all a world of good. As a dear friend once said (the one who posted two above me ), not all healing happens in a medical setting.

    Lots of prayers for the two kidney kids!
    Ellen
    INTERCOT Staff: Dining, Disney Cruise Line, Guests with Special Needs


    Next up:
    Christmas with the Mouse
    President's Week 2013

  14. #13
    Join Date
    Mar 2004
    Location
    Arizona
    Posts
    8,024
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    I'll keep your family and the other boy's family on our church's prayer list.

    How old are they? I hope you enjoy your trip!
    I'll meet you at the Rainbow Bridge.

  15. #14
    Join Date
    Jul 2005
    Location
    Marcellus, NY
    Posts
    8,411
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    Default

    Sending loads and loads of and prayers your family's way, and for the other boy you know - I so hope things turn around for both of you! And like everyone else said, don't feel bad about your trip - you definitely deserve the joy & happiness it will bring you, and when you get home, you'll be better off as a family, and able to be even stronger for your friends. Keep us posted on how the boys are doing!!
    Blythe

    Past trips -
    3x offsite,May 06 CBR,Oct 07 I'cot 10,Dec 08 CBR,Jan 09 ASMu,Oct 09 CBR/AKL,Jan 11 AsMu,Aug 11 CBR, Oct 11 AKL,Oct 12 I'cot 15,Aug 13 CBR,Aug '14 mini AKL trip

    Next -
    May '17 DL OR June '17 CBR

  16. #15
    Join Date
    Dec 2003
    Location
    707mi. from WDW
    Posts
    5,333
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    Default

    Sending loads of and prayers for all.
    Hoping your dreams come true!
    Next
    DD, DS @ AKV Dec 12 SSR 12-16


    AKV Savannah 8/08
    ASMu my BD 4/08 w/ Angel & MrsSgtT
    SSR 10/07 BWV-12/06
    Pop-05 04 03 1st Nighters
    OKW-97 96 Poly- 89 87 86 CR:72
    Offsite:8xs FW:83 82 82 DL 67,68,71

  17. #16
    Join Date
    Apr 2001
    Location
    Allen, TX
    Posts
    44,454
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    Default

    on the way!
    Rhonda

  18. #17
    Join Date
    Mar 2002
    Location
    long island ny
    Posts
    3,129
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    Default

    Thoughts and prayers for your son and certainly for the other little guy as well.
    Phyllis

  19. #18
    Join Date
    Aug 2004
    Location
    West of Boston, MA
    Posts
    6,480
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    Default

    Prayers and pixie dust to both little guys. Here's hoping for a speedy recovery for both of them. Go and enjoy your trip.
    șoșKathyșoș TimeShare 12-12
    GKTW June 2011,Off site Feb/March 2011
    Dolphin and POFQ 8/10
    POFQ Sept 08
    ASMu Aug-Sept 07
    Dolphin & CS-12/05. Mousefest & Dis Cruise
    Dolphin & POR July 04,WDW-Dolphin June 02Dolphin 6/2000
    Swan 6/99 -Dolphin March 98, March 94
    +many more times offsite

  20. #19
    Join Date
    Apr 2004
    Location
    south carolina
    Posts
    1,140
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    Default

    Kelly, Prayers and pixie dust to you and the other little boys family. When it comes to our children no problem seems to small. An extra prayer is being said right now for you.
    Up Next
    15 Disney Hilton Head Jul 5 - Jul 7
    15 Disney Dream Jul 1 - Jul 5
    15 Beach Club Jun 27- Jul 1
    14 Dolphin Resort Jun 12-16
    13 Fort Wilderness Christmas Dec 20- Dec 26

  21. #20
    Join Date
    Jan 2006
    Location
    metairie, la
    Posts
    1,116
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    Default

    More prayers and pixie dust coming your way and for the other family also.
    LORI

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