Could I get some Pixie dust and prayers for my 8 year old?

[Terra]

My son David is 8 years old. He has some struggles in life. He has Autism, ADHD, Sensory Integration Disorder, anxiety, and asthma.
For the last month he has been getting unexplained bruising on his abdomen, chest, and back. Not small ones but big 2-4 inch ones with knots. And he's been getting 3 or 4 nose bleeds a week. Sometimes a couple daily.
I took him to his pediatrician who immediately sent him to the hospital for rushed blood work.
Initial blood results are in. I'm not going to lie. I'm kind of freaking out. The doctor called and referred him immediately to a hematologist. His platelet count is "almost critical" she said, at 21,000. Normal count should be 140-400,000. Yikes!
So off we go Wednesday to Nemours in Orlando.

Naturally, this mama is worried sick. Praying a lot. And I know this sounds so "woe is me" because there are people who have much more on their plate in life.
I just feel like he already has so many challenges, and now we could be looking at a chronic blood disorder.

Any extra pixie and prayers, love and light you have would be so appreciated.
:pixie: for David.

[VWL Mom]

Send prayers and pixie dust for David, you, and the family. I'm so sorry your going through this, helplessly watching your ill child is a whole 'nother ball game.
:pixie::pixie::pixie:

[dobby2010]

Prayers and pixie dust to you and your little one!

[IloveJack]

Prayers

[Strmchsr]

Lots of prayers and :pixie: going up for David. Keep us posted.

[CanadianWDWFan]

My brother had the same thing when he was a kid, he is now 45. I am sure it freaked my Mom out as well, in fact she still talks about it to this day. He was sick a little while but after the meds started working he got better quickly. The trick was weaning him off the meds as the body didn't like to go cold turkey with the meds he was on. Once he was off the meds and a couple of blood tests over the next few months he never looked back and had no recurrence of this condition.

[Pally]

I am sure you are very scared. Stay positive. Sending:pixie: I was a hematology secretary for 28 years. I have seen many, many cases treated very successfully.:thumbsup:

[Reedy Creek Buccaneer]

Prayers and pixie dust!

[faline]

I will keep your son and family in my thoughts! Lots of pixie dust heading your way. Please let us know how things ae going!!:pixie::pixie::pixie:

[cer]

Terra,

That is awful. We will be remembering David and your family.

[PopPhan]

Many prayers, healing thoughts and :pixie:

[Mickey'sGirl]

Thinking of you and David, Terra. You are such a positive person, I know your energy will give your son strength and support. Best wishes for all of you.

[NJGIRL]

I'm saying a prayer for your son. Please keep us posted.

[Pirate Granny]

Prayers for your son and family

[John]

Oh wow. Prayers for all of you!

[Kairi_7378]

Sending prayers and pixie dust for a quick diagnosis, successful treatment, and quick recovery! Also sending some for you and your family.

[Terra]

Thank you so very much :mickey:
I'm feeling a little more at ease reading all of these prayers and good thoughts.
I will keep you all posted!

[ibelieveindisneymagic]

Oh ick!

Sending prayers of strength and comfort for you, and for David. I remember when my daughter was quite sick and it is scary, no doubt about it. He will be in good hands and I hope everything gets sorted and under control soon.

A little extra :pixie: can't hurt either!

[disney obsessed]

:pixie::pixie::pixie::pixie:

[goofy for pluto]

Sending positive thoughts and prayers for you and David. I know it is a scary time for you but God is with you and your family. Sending prayers also for the medical team, that they make the best choices for him and his recovery. :pixie: :pixie: :pixie:

[TheVBs]

Nothing fills your plate like being afraid for your child. I know that first hand. Never apologize for that. Lots and lots of positive thoughts for David and your whole family. Please keep us posted!

[badkitty]

Prayers and pixie dust for you and your son.:magic:

[deedee73]

I just read this post after looking in on my little one sleeping - I am so sorry that any parent has to go through what you are. To me it is the fear of the unknown more than anything except seeing your precious child scared or innpain. My heart goes out to you and your son. Know you are both in our thoughts & prayers. Positive thinking & prayers can move mountains so please stay positive especially for your child & keep us all up fated so we can continue to send [emoji14]ixies & prayers.

[missymouseworld]

Sorry to hear your family has to go through all that....
:pixie::pixie::pixie: In our thoughts!

[poodlemcduck]

Prayers and Pixie dust for your son. Your not alone.

[BrerGnat]

So sorry to hear about David. My kids have many of the same struggles so I can imagine how you must feel knowing there is something ELSE to worry about now too. I hope it is nothing serious and that David gets a clean bill of health soon. Your family is in my thoughts.

[TheDuckRocks]

My prayers for David and your family. And an extra one for you, being a concerned mom during waiting times like this is rally difficult.

[mydisneygirls]

Thinking positive thoughts for David and pixie dust for all.

[AgentC]

Sending lots of positive thoughts your way. I'm hoping you get good news very soon.

[laprana]

Keeping David and you in my thoughts and prayers! And sending lots of :pixie::pixie: to you both for a quick recovery and good outcome! Hang in there! :hug:

[BriarRose0708]

Sending lots of prayers and good vibes your way! I hope all turns out well and you get answers soon!

[Terra]

UPDATE:

David has a platelet condition called ITP. Results look good that his platelet count should be back to normal in 3-6 months. If not they will do some treatments to help it along which in that case it could be a year or so. He said he doesn't generally see this in children of this age. Usually it is younger.
In the mean time low key activities for him. No jumping, running, climbing trees, contact sports, anything that could cause a bleed, especially yo the head.
They are very confident at this point there is no cancer.
Thank you all so much for all thoughts, :pixie: and prayers. Now the long road to recovery.

[faline]

I wish David a speedy recovery!!

[CanadianWDWFan]

Glad to hear you have a diagnosis. ITP is what my brother had. Not having to take any meds is a good thing, my brother needed prednisone. I am sure he will be back to his old self in no time!

[Disney4us2]

:pixie::pixie::pixie:

[deedee73]

So glad the specialist had a diagnosis & treatment plan. David is on the road to recovery. Sending you more [emoji14]ixies & prayers.

[minnie04]

prayers and :pixie: coming your way!!! :pixie: :pixie: :pixie:

[princessgirls]

Terra we will keep David in prayer. Please keep us updated.

Julie:mickey:

[Ian]

Great news ... glad to hear they were able to identify it and there is a treatment plan in place. Best wishes for a speedy recovery!

[goofy for pluto]

Great news!
Sending prayers and Pixie Dust for David and your family. We all want to be here for you so keep us posted as he recovers. :pixie::pixie::pixie:

[wilcat]

Glad you got the results back so quickly. Sending lots of :pixie: pixie dust for a speedy recovery!

[honeybear]

Prayers, {{{Huggs}}} and :pixie:

[Terra]

UPDATE:

So we had our first set back on this journey. His platelet levels got up to about 31K
And then plummeted over the next week or so.
This past Tuesday evening he got hit in the head and we have to take him for safe precautions, to get examined. Well within a few hours, he started brusing again and lots of petechiae all over his body.
They did a cat scan and he had no brain bleeds thank God. But his platelets had dropped to critical level [10K].
So they transported him from our local hospital to Nemours.
They checked his levels again as soon as they got there and they had dropped to 8K. A 2K drop in less than 4 hours.
He was admitted and then did a RHoGam treatment. Which basically boosts the platelets up enough to get out of critical level. It's a temporary fix, but helps so they don't risk any internal bleeding which is what we want to avoid because that's when things can get bad quickly.
So we were there from Tuesday night until Thursday afternoon. His levels finally came up to 26K which gets us just out of critical level. Still low, but less threatening.
Still have a long road ahead of us until this all resolves itself.

I think the worst part is that any treatment is basically a temporary fix until the body straightens itself out and the ITP goes into remission.
Here's to months of recovery ;)
Thank you for continued thoughts, prayers, love & light...and lots of :pixie:

Sadly though because of all this, money is tight having to go back and forth to Nemours and with him having to be less active, I've had to cancel our annual labor day vacation to Disney. Just can't swing paying for the hotel and meals for 4 days. We can go over for a day trip though. Thinking Animal Kingdom where it can be more low key but lots of fun exploring. They love AK!

[goofy for pluto]

Sending prayers and pixie dust to you and your family!
Thank you for keeping us updated on David.
:pixie: :pixie: :pixie:

[VWL Mom]

Thanks for the update. Continued prayers and pixie dust :pixie::pixie::pixie:

[deedee73]

Sending loads of good wishes & [emoji14]ixies. Keep your spirits up. We have you & David in our prayers.

[TinkerbellT421]

Terra, I'm sorry I am just seeing this post now, haven't been on the boards in a long time. I'm so sorry to hear your son and family is going through this. I can only imagine how stressful this all has been for you all. Sending lots of positive thoughts, prayers and pixie dust your way, for a speedy recovery and no more set backs.

[Terra]

Terra, I'm sorry I am just seeing this post now, haven't been on the boards in a long time. I'm so sorry to hear your son and family is going through this. I can only imagine how stressful this all has been for you all. Sending lots of positive thoughts, prayers and pixie dust your way, for a speedy recovery and no more set backs.
Welcome back :mickey:

[faline]

What a distressing journey for your family!! More pixie dust headed your way!! :pixie::pixie::pixie:

[TheVBs]

So great that you know what's going on, but I'm so sorry about the setbacks and hospital visit. You all must be exhausted. Lots and lots of :pixie: for all of you!

[Jeff]

Terra, I will keep David and you in my prayers!

[Mickey'sGirl]

Bumping this to check in on David. I hope he is doing better.

[RedSoxFan]

Sending prayers. I hope he gets better soon.:)